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Resource Details

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Johns Hopkins COVID Long Study

Resource Type:
Survey/Questionnaire
Related Resources:
See list of available resources
Availability:
Publicly Available, No Cost
Common Data Elements:
No
Date Published:
01/25/2022
Date Record Updated:
03/09/2022
Description:
Research scientists from the Johns Hopkins Bloomberg School of Public Health want to learn more about people’s experience with COVID-19 and the implications of Long COVID/PASC. This baseline survey consists of 9 sections, with questions related to testing, symptoms, treatments and medications, comorbidities, and mental health.
Content Adapted From:
National Institute on Aging's Baltimore Longitudinal Study of Aging (BLSA) study, Godin Leisure-Time Exercise Questionnaire, Idiopathic Hypersomnia Severity Scale, AIDS Linked to the Intravenous Experience (ALIVE) Study, Wood Mental Fatigue Inventory, General Anxiety Disorder-7. See pdf for additional information.

Additional Descriptors

  • Administered By:
  • Self
  • Administration Mode:
  • Online or Mobile App
  • Administration Time:
  • 60+
  • Ease of Use:
  • Moderate
  • Electronic Data Capture (EDC):
  • RedCap
  • Language:
  • English
  • Number of Survey Questions :
  • 100+
  • Resource Type:
  • Survey/Questionnaire
  • Study Population:
  • General
  • Event Type:
  • Infectious Disease Outbreak
  • Exposure Agent:
  • Biological or Infectious Agent
    • Biological or Infectious Agent: Virus
      • Virus: SARS-CoV-2, SARS-CoV-1, MERS
        • SARS-CoV-2, SARS-CoV-1, MERS: Long COVID/Post-Acute Sequelae of COVID (PASC)
  • Health Impact or Organ System:
  • Mental Health or Well-Being
  • Research Program Product:
  • N/A
  • Special Topics:
  • Comorbidities, Demographics, Diagnosis or Status or Treatment or Recovery, Lifestyle or Quality of Life, Risk Reduction Behaviors, Symptoms
    • Risk Reduction Behaviors: Vaccine-related

Related Resources

Data Dictionary
John Hopkins COVID Long Data Dictionary CSV

Survey/Questionnaire
Testing & Symptoms Form

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Last Reviewed: July 07, 2025